Clinic Designation Criteria

https://tinyurl.com/clinicdesignation

 

 

 

 

Turner Syndrome Care Guidelines for Professionals

After two years of dedicated work by a team of experts from both the US and Europe, the new Care Guidelines for TS have been finalized. TSGA is proud to have been a primary sponsor of this project.

http://www.eje-online.org/content/177/3/G1.full.pdf+html

These guidelines are directed by evidence-based research. We are now working with the greater TS community to increase research to fill in gaps in our knowledge.

 

 

Turner Syndrome Care Guidelines for Patients and Families – Available in English and Spanish

This is a brief synopsis of the Professional Care Guidelines intended to improve care by encouraging communication between individuals with Turner syndrome/parents/caregivers and their health-care providers during visits.

http://schererclin.com/tspatiented2017/

 

 

Turner Syndrome: Diagnosis and Management, American Family Physician, 2007  includes this table:

SORT: KEY RECOMMENDATIONS FOR PRACTICE

 

CLINICAL RECOMMENDATION EVIDENCE RATING REFERENCES

If any Y chromosome material is shown on the karyotype, prophylactic laparoscopic gonadectomy is required.

C

11

Cardiovascular evaluations should be performed at diagnosis to rule out congenital heart defects.

C

11

Ongoing estrogen therapy should be initiated in the preteen years.

B

17

Short stature should be treated with human growth hormone until the patient reaches a bone age of 14 years.

A

15,16

Calcium and vitamin D supplementation should be initiated at 10 years of age.

C

11


A = consistent, good-quality patient-oriented evidence; B = inconsistent or limited-quality patient-oriented evidence; C = consensus, disease-oriented evidence, usual practice, expert opinion, or case series. For information about the SORT evidence rating system, see page 323 or http://www.aafp.org/afpsort.xml.

Overview of Turner Syndrome, Medscape

Turner Syndrome Overview, Mayo Clinic

Radiographic Features of TS, Radiopaedia. org  

Click on x-ray for additional images

Bicuspid Aortic Valve, Radiopaedia.org

Click on image to view resource page

Experts Call for Improved Estrogen Testing Accuracy, endocrineweb, 2015

 

Link to CLINIC list

Link to TOOLS page, including checklists