Turner Syndrome Global Alliance, Inc. is a 501(c) 3 nonprofit organization incorporated in 2014 by parents of girls with Turner syndrome who want more information and better access to resources for their daughters. While grateful for the medical and social interventions we have been able to access, we see the importance for a full understanding of TS at a genetic level and how that affects the health and lives of our girls. As our girls transition toward adult care, we recognize that there are very few quality resources available to the adult population. We also acknowledge the urgent need for knowledge and resources concerning the impact of TS to the cognitive and social development of girls and women with Turner syndrome. We are determined to change this and create a future with more knowledge and….support and tools.
Your donation will be used to support our mission of connecting connect science, resources, and funding to the Turner Syndrome.
The Turner Syndrome Global Alliance aims to have a direct impact on the lives of girls, women, and families living with Turner syndrome (TS) by working to include TS in the national conversation on research. We are the voice for a patient and parent perspective as we seek collaboration with scientists, researchers, and doctors to ensure that TS research and resources have meaningful outcomes.
Connecting Science: TSGA seeks opportunities to include Turner syndrome in existing and new research studies and strive to generate interest in TS in the research community.
Connecting Resources: TSGA will collaborate with other organizations, groups, and individuals who provide accurate and important resources to adults, girls, and families living with TS. We will also support the development of TS Clinics through parent advocacy and shared experience.
Connecting Funding: By establishing relationships with scientific organizations, local hospitals, universities, and other stakeholders in research, TSGA will seek opportunities to connect funding to research related to Turner syndrome.