FOR PATIENTS & FAMILIES
Find a Turner Syndrome Clinic
Specialty Turner syndrome care is available across the United States. Browse clinics by state below, or search by state name to find care near you.
Regional Resource Centers
These TSGA-designated Level 4 clinics represent the most comprehensive Turner syndrome care programs in the country. Click a center to jump to its listing below.
Browse Clinics by State
Click a state to expand and view all TSGA-recognized clinics in that region. Only states with at least one clinic are shown.
Alabama (1 clinic)
Children’s of Alabama
Children’s Park Place, 1601 4th Ave South, Birmingham, AL 35233
Phone: (205) 838-9107
Visit clinic website →
Children’s Park Place, 1601 4th Ave South, Birmingham, AL 35233
Phone: (205) 838-9107
Visit clinic website →
Alaska (1 clinic)
Providence Medical Group Alaska Pediatric Subspecialties
3340 Providence Drive Suite A351, Anchorage, AK 99508
Lead: Cydney Fenton M.D.
Phone: (907) 212-4824
3340 Providence Drive Suite A351, Anchorage, AK 99508
Lead: Cydney Fenton M.D.
Phone: (907) 212-4824
California (4 clinics)
Level 1 ClinicThis is a self-designated level that is led by either an endocrinologist or geneticist who is working to develop referral sources to specialty care such as cardiology, neuropsychology, and more. Level 1 Providers follow current TS Care Guidelines and share information to connect families with local and/or national advocacy organizations.
Lucille Packard Children’s Hospital Stanford
730 Welch Rd 2nd Floor, Palo Alto, CA 94304
Lead: Caroline Buckway M.D.
Phone: (650) 736-7642
Visit clinic website →
730 Welch Rd 2nd Floor, Palo Alto, CA 94304
Lead: Caroline Buckway M.D.
Phone: (650) 736-7642
Visit clinic website →
Level 2 ClinicThis is a self-designated level that meets all the requirements of Level 1 plus a Clinic page on their institution's website, follow the KidNECT model of care, and offer same day visits with multiple specialists.
Children’s Hospital Los Angeles
4650 Sunset Blvd. MS#61, Los Angeles, CA 90027
Lead: Brian Miyazaki MD
Phone: (323) 361-4606
4650 Sunset Blvd. MS#61, Los Angeles, CA 90027
Lead: Brian Miyazaki MD
Phone: (323) 361-4606
Level 4 Regional Resource CenterLevel 4 Regional Resource Centers are the most developed care models across the country and are designated by TSGA. In order to receive a Level 4 TS Regional Resource Center designation, these programs meet all the requirements of Levels 1, 2, and 3, plus are involved in multi-institutional Turner syndrome research, have a program to train or mentor medical students and Fellows, and are willing to provide support and resources to other providers in the region as needed.
Rady Children’s Hospital – UC San Diego Health
200 W Arbor Dr., San Diego, CA 92103
Lead: Karen Oerter Klein MD
Phone: (858) 657-1636
Visit clinic website →
200 W Arbor Dr., San Diego, CA 92103
Lead: Karen Oerter Klein MD
Phone: (858) 657-1636
Visit clinic website →
Level 1 ClinicThis is a self-designated level that is led by either an endocrinologist or geneticist who is working to develop referral sources to specialty care such as cardiology, neuropsychology, and more. Level 1 Providers follow current TS Care Guidelines and share information to connect families with local and/or national advocacy organizations.
CHOC Children’s Hospital
1201 W. La Veta Avenue, Orange County, CA 92868
Lead: Amanda Phuong Le RN BSN CPN
Phone: (714) 509-8494
Visit clinic website →
1201 W. La Veta Avenue, Orange County, CA 92868
Lead: Amanda Phuong Le RN BSN CPN
Phone: (714) 509-8494
Visit clinic website →
Colorado (1 clinic)
Level 4 Regional Resource CenterLevel 4 Regional Resource Centers are the most developed care models across the country and are designated by TSGA. In order to receive a Level 4 TS Regional Resource Center designation, these programs meet all the requirements of Levels 1, 2, and 3, plus are involved in multi-institutional Turner syndrome research, have a program to train or mentor medical students and Fellows, and are willing to provide support and resources to other providers in the region as needed.
Children’s Hospital Colorado — eXtraOrdinary Kids Turner Syndrome Clinic
13123 E 16th Ave., Aurora, CO 80045
Lead: Shanlee Davis M.D.
Phone: (720) 777-8375
Visit clinic website →
13123 E 16th Ave., Aurora, CO 80045
Lead: Shanlee Davis M.D.
Phone: (720) 777-8375
Visit clinic website →
Connecticut (1 clinic)
Connecticut Children’s Medical Center
282 Washington Street, Hartford, CT 06106
Lead: Karen Rubin MD
Phone: (860) 545-9000
Visit clinic website →
282 Washington Street, Hartford, CT 06106
Lead: Karen Rubin MD
Phone: (860) 545-9000
Visit clinic website →
Florida (3 clinics)
University of Florida Health
200 SW Archer Road, Gainesville, FL 32608
Lead: Elizabeth Fudge M.D.
Phone: (352) 265-5625
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200 SW Archer Road, Gainesville, FL 32608
Lead: Elizabeth Fudge M.D.
Phone: (352) 265-5625
Visit clinic website →
Level 1 ClinicThis is a self-designated level that is led by either an endocrinologist or geneticist who is working to develop referral sources to specialty care such as cardiology, neuropsychology, and more. Level 1 Providers follow current TS Care Guidelines and share information to connect families with local and/or national advocacy organizations.
All Children’s Hospital
501 6th Avenue South, St. Petersburg, FL 33701
Lead: Melissa Crenshaw M.D.
Phone: (727) 898-7451
Visit clinic website →
501 6th Avenue South, St. Petersburg, FL 33701
Lead: Melissa Crenshaw M.D.
Phone: (727) 898-7451
Visit clinic website →
Level 1 ClinicThis is a self-designated level that is led by either an endocrinologist or geneticist who is working to develop referral sources to specialty care such as cardiology, neuropsychology, and more. Level 1 Providers follow current TS Care Guidelines and share information to connect families with local and/or national advocacy organizations.
Shriners Hospital for Children – Tampa
12502 USF Pine Drive, Tampa, FL 33612
Lead: Dorothy Shulman M.D.
Phone: (813) 972-2250
12502 USF Pine Drive, Tampa, FL 33612
Lead: Dorothy Shulman M.D.
Phone: (813) 972-2250
Georgia (1 clinic)
Level 1 ClinicThis is a self-designated level that is led by either an endocrinologist or geneticist who is working to develop referral sources to specialty care such as cardiology, neuropsychology, and more. Level 1 Providers follow current TS Care Guidelines and share information to connect families with local and/or national advocacy organizations.
Children’s Healthcare of Atlanta — Emory Children’s Center
2015 Upper Gate Drive NE, Atlanta, GA 30322
Lead: Doris Fadoju M.D.
Phone: (404) 785-5437
Visit clinic website →
2015 Upper Gate Drive NE, Atlanta, GA 30322
Lead: Doris Fadoju M.D.
Phone: (404) 785-5437
Visit clinic website →
Illinois (1 clinic)
Level 4 Regional Resource CenterLevel 4 Regional Resource Centers are the most developed care models across the country and are designated by TSGA. In order to receive a Level 4 TS Regional Resource Center designation, these programs meet all the requirements of Levels 1, 2, and 3, plus are involved in multi-institutional Turner syndrome research, have a program to train or mentor medical students and Fellows, and are willing to provide support and resources to other providers in the region as needed.
Lurie Children’s Hospital
225 E. Chicago Ave., Chicago, IL 60611
Lead: Wendy Brickman M.D.
Phone: (312) 227-6090
Visit clinic website →
225 E. Chicago Ave., Chicago, IL 60611
Lead: Wendy Brickman M.D.
Phone: (312) 227-6090
Visit clinic website →
Kansas (1 clinic)
Wichita Great HeighTS Clinic
3243 E Murdock, Wichita, KS 67208
Lead: Jewel Akpan MSN (Nurse Co-Manager); My Trang Nguyen (Endocrine Staff Nurse)
Phone: (316) 500-8940 / (316) 500-8958
3243 E Murdock, Wichita, KS 67208
Lead: Jewel Akpan MSN (Nurse Co-Manager); My Trang Nguyen (Endocrine Staff Nurse)
Phone: (316) 500-8940 / (316) 500-8958
Kentucky (1 clinic)
Norton Children’s — Novak Center for Children’s Health
411 E Chestnut St, Louisville, KY 40202
Lead: Dr. Marylou Dryer
Phone: (502) 588-3400
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411 E Chestnut St, Louisville, KY 40202
Lead: Dr. Marylou Dryer
Phone: (502) 588-3400
Visit clinic website →
Massachusetts (1 clinic)
Level 4 Regional Resource CenterLevel 4 Regional Resource Centers are the most developed care models across the country and are designated by TSGA. In order to receive a Level 4 TS Regional Resource Center designation, these programs meet all the requirements of Levels 1, 2, and 3, plus are involved in multi-institutional Turner syndrome research, have a program to train or mentor medical students and Fellows, and are willing to provide support and resources to other providers in the region as needed.
Massachusetts General Hospital — Yawkey Center
32 Fruit Street Suite 6B, Boston, MA 02114
Lead: Angela Lin M.D.
Phone: (617) 726-1561
Visit clinic website →
32 Fruit Street Suite 6B, Boston, MA 02114
Lead: Angela Lin M.D.
Phone: (617) 726-1561
Visit clinic website →
Missouri (3 clinics)
Level 4 Regional Resource CenterLevel 4 Regional Resource Centers are the most developed care models across the country and are designated by TSGA. In order to receive a Level 4 TS Regional Resource Center designation, these programs meet all the requirements of Levels 1, 2, and 3, plus are involved in multi-institutional Turner syndrome research, have a program to train or mentor medical students and Fellows, and are willing to provide support and resources to other providers in the region as needed.
Children’s Mercy on Broadway
3101 Broadway Blvd., Kansas City, MO 64111
Lead: Joseph Cernich M.D.
Phone: (816) 960-8803
Visit clinic website →
3101 Broadway Blvd., Kansas City, MO 64111
Lead: Joseph Cernich M.D.
Phone: (816) 960-8803
Visit clinic website →
Cardinal Glennon Children’s Medical Center
1465 S. Grand Boulevard, St. Louis, MO 63104
Lead: Dr. Susan Myers MD
Phone: (314) 577-5648
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1465 S. Grand Boulevard, St. Louis, MO 63104
Lead: Dr. Susan Myers MD
Phone: (314) 577-5648
Visit clinic website →
Washington University / St. Louis Children’s Hospital Specialty Care Clinic
13001 North Outer Forty, Town and Country, MO 63017
Lead: Amanda Ingram (TS Clinic Coordinator)
Phone: (314) 554-5437
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13001 North Outer Forty, Town and Country, MO 63017
Lead: Amanda Ingram (TS Clinic Coordinator)
Phone: (314) 554-5437
Visit clinic website →
New Jersey (3 clinics)
Hackensack University Medical Center
30 Prospect Avenue, Hackensack, NJ 07601
Lead: Javier Aisenberg M.D.; Amy Chartoff APN
Phone: (551) 996-5329
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30 Prospect Avenue, Hackensack, NJ 07601
Lead: Javier Aisenberg M.D.; Amy Chartoff APN
Phone: (551) 996-5329
Visit clinic website →
Rutgers Robert Wood Johnson Medical School — Children’s Health Institute of NJ
89 French Street Suite 2300, New Brunswick, NJ 08901
Lead: Ian Marshall MD
Phone: (732) 235-6230
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89 French Street Suite 2300, New Brunswick, NJ 08901
Lead: Ian Marshall MD
Phone: (732) 235-6230
Visit clinic website →
St. Joseph’s Children’s Hospital
11 Getty Avenue, Paterson, NJ 07503
Lead: Katerina Harwood M.D.
Phone: (973) 754-2727
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11 Getty Avenue, Paterson, NJ 07503
Lead: Katerina Harwood M.D.
Phone: (973) 754-2727
Visit clinic website →
New York (2 clinics)
Children’s Hospital at Montefiore
3415 Bainbridge Ave., Bronx, NY 10467
Lead: Rubina Heptulla M.D.
Phone: (718) 920-4664
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3415 Bainbridge Ave., Bronx, NY 10467
Lead: Rubina Heptulla M.D.
Phone: (718) 920-4664
Visit clinic website →
Level 2 ClinicThis is a self-designated level that meets all the requirements of Level 1 plus a Clinic page on their institution's website, follow the KidNECT model of care, and offer same day visits with multiple specialists.
NYU Langone Pediatric Associates – Mineola
101 Mineola Blvd 2nd Floor, Mineola, NY 11501
Lead: Paul Saenger M.D.; Siham Accacha M.D.
Phone: (516) 663-2112
Contact: Lori.Benzoni@nyulangone.org or Turnersyndrome@nyulangone.org
101 Mineola Blvd 2nd Floor, Mineola, NY 11501
Lead: Paul Saenger M.D.; Siham Accacha M.D.
Phone: (516) 663-2112
Contact: Lori.Benzoni@nyulangone.org or Turnersyndrome@nyulangone.org
North Carolina (2 clinics)
Level 4 Regional Resource CenterLevel 4 Regional Resource Centers are the most developed care models across the country and are designated by TSGA. In order to receive a Level 4 TS Regional Resource Center designation, these programs meet all the requirements of Levels 1, 2, and 3, plus are involved in multi-institutional Turner syndrome research, have a program to train or mentor medical students and Fellows, and are willing to provide support and resources to other providers in the region as needed.
North Carolina Children’s Hospital
101 Manning Drive, Chapel Hill, NC 27514
Lead: Jennifer Law M.D.
Phone: (919) 962-2796
Visit clinic website →
101 Manning Drive, Chapel Hill, NC 27514
Lead: Jennifer Law M.D.
Phone: (919) 962-2796
Visit clinic website →
Adult Care ClinicA few institutions across the country offer a coordinated care program for Adults with Turner syndrome, and TSGA expects other programs to develop in the coming years. Each of these Adult Care Clinic Programs looks different depending on the resources of each institution. TSGA is in the process of developing Levels of Care Designation Criteria for Adult programs. Here, we are highlighting them as a resource.
UNC Women’s Hospital — Menopause Clinic
101 Manning Drive, Chapel Hill, NC 27514
Lead: Jennifer Howell MD
Phone: (984) 974-2131
Note: Ask to be scheduled in the Menopause Clinic
101 Manning Drive, Chapel Hill, NC 27514
Lead: Jennifer Howell MD
Phone: (984) 974-2131
Note: Ask to be scheduled in the Menopause Clinic
Ohio (3 clinics)
Akron Children’s Hospital
215 W. Bowery Street Suite 6400, Akron, OH 44308
Lead: Alicia Lowes DO
Phone: (330) 543-3276
Visit clinic website →
215 W. Bowery Street Suite 6400, Akron, OH 44308
Lead: Alicia Lowes DO
Phone: (330) 543-3276
Visit clinic website →
Level 4 Regional Resource CenterLevel 4 Regional Resource Centers are the most developed care models across the country and are designated by TSGA. In order to receive a Level 4 TS Regional Resource Center designation, these programs meet all the requirements of Levels 1, 2, and 3, plus are involved in multi-institutional Turner syndrome research, have a program to train or mentor medical students and Fellows, and are willing to provide support and resources to other providers in the region as needed.
Cincinnati Children’s
3333 Burnet Avenue, Cincinnati, OH 45229
Lead: Philippe Backeljauw M.D.
Phone: (513) 636-4744
Visit clinic website →
3333 Burnet Avenue, Cincinnati, OH 45229
Lead: Philippe Backeljauw M.D.
Phone: (513) 636-4744
Visit clinic website →
Nationwide Children’s Hospital
380 Butterfly Gardens Drive, Columbus, OH 43215
Lead: Jennifer M Ladd MD MSc
Phone: (614) 722-4425
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380 Butterfly Gardens Drive, Columbus, OH 43215
Lead: Jennifer M Ladd MD MSc
Phone: (614) 722-4425
Visit clinic website →
Oklahoma (1 clinic)
Level 2 ClinicThis is a self-designated level that meets all the requirements of Level 1 plus a Clinic page on their institution's website, follow the KidNECT model of care, and offer same day visits with multiple specialists.
University of Oklahoma College of Medicine
1200 Children’s Avenue Suite 4500, Oklahoma City, OK 73104
Lead: Amanda Patterson BSN RN
Phone: (405) 271-6764
Visit clinic website →
1200 Children’s Avenue Suite 4500, Oklahoma City, OK 73104
Lead: Amanda Patterson BSN RN
Phone: (405) 271-6764
Visit clinic website →
Oregon (1 clinic)
Doernbecher Children’s Hospital
3181 SW Sam Jackson Park Road, Portland, OR 97239
Lead: Katie Woods M.D.
Phone: (503) 494-3273
Visit clinic website →
3181 SW Sam Jackson Park Road, Portland, OR 97239
Lead: Katie Woods M.D.
Phone: (503) 494-3273
Visit clinic website →
Pennsylvania (4 clinics)
Level 4 Regional Resource CenterLevel 4 Regional Resource Centers are the most developed care models across the country and are designated by TSGA. In order to receive a Level 4 TS Regional Resource Center designation, these programs meet all the requirements of Levels 1, 2, and 3, plus are involved in multi-institutional Turner syndrome research, have a program to train or mentor medical students and Fellows, and are willing to provide support and resources to other providers in the region as needed.
Children’s Hospital of Philadelphia
34th Street and Civic Center Boulevard, Philadelphia, PA 19104
Lead: Vaneeta Bamba M.D.
Phone: (215) 590-3174
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34th Street and Civic Center Boulevard, Philadelphia, PA 19104
Lead: Vaneeta Bamba M.D.
Phone: (215) 590-3174
Visit clinic website →
Penn Medicine Adult Turner Syndrome Program
Call for location information
Phone: (800) 879-2467
Visit clinic website →
Adult care program
Call for location information
Phone: (800) 879-2467
Visit clinic website →
Adult care program
Thomas Jefferson University Kimmel School of Medicine
833 Chestnut Street Suite 1210, Philadelphia, PA 19107
Lead: Judith L. Ross M.D.
Phone: (215) 955-6520
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833 Chestnut Street Suite 1210, Philadelphia, PA 19107
Lead: Judith L. Ross M.D.
Phone: (215) 955-6520
Visit clinic website →
Children’s Hospital of Pittsburgh
4401 Penn Avenue, Pittsburgh, PA 15224
Lead: Selma Witchel M.D.
Phone: (412) 692-5170
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4401 Penn Avenue, Pittsburgh, PA 15224
Lead: Selma Witchel M.D.
Phone: (412) 692-5170
Visit clinic website →
Tennessee (2 clinics)
Monroe Carell Jr Children’s Hospital at Vanderbilt
2200 Children’s Way 6th Floor, Nashville, TN 37232
Lead: Barbara Duffy RN CPNP
Phone: (615) 322-7427
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2200 Children’s Way 6th Floor, Nashville, TN 37232
Lead: Barbara Duffy RN CPNP
Phone: (615) 322-7427
Visit clinic website →
Niswonger Children’s Hospital
408 North State of Franklin Road Suite 31B, Johnson City, TN 37604
Lead: George Ford MD MS; Evan Los MD
Phone: (423) 431-4946
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408 North State of Franklin Road Suite 31B, Johnson City, TN 37604
Lead: George Ford MD MS; Evan Los MD
Phone: (423) 431-4946
Visit clinic website →
Texas (2 clinics)
UT Health Houston — Pediatric Care
7000 Fannin Suite 1200, Houston, TX 77030
Lead: Michelle Rivera-Davila M.D.
Phone: (832) 325-7344
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7000 Fannin Suite 1200, Houston, TX 77030
Lead: Michelle Rivera-Davila M.D.
Phone: (832) 325-7344
Visit clinic website →
UT Health Houston — Adult Turner Syndrome Comprehensive Care Clinic
6410 Fannin St Suite 600, Houston, TX 77030
Phone: (832) 325-7344
Visit clinic website →
Adult care program
6410 Fannin St Suite 600, Houston, TX 77030
Phone: (832) 325-7344
Visit clinic website →
Adult care program
Washington (1 clinic)
Level 4 Regional Resource CenterLevel 4 Regional Resource Centers are the most developed care models across the country and are designated by TSGA. In order to receive a Level 4 TS Regional Resource Center designation, these programs meet all the requirements of Levels 1, 2, and 3, plus are involved in multi-institutional Turner syndrome research, have a program to train or mentor medical students and Fellows, and are willing to provide support and resources to other providers in the region as needed.
Seattle Children’s Hospital
4800 Point Way NE, Seattle, WA 98105
Phone: (206) 987-2640
Visit clinic website →
4800 Point Way NE, Seattle, WA 98105
Phone: (206) 987-2640
Visit clinic website →
Washington D.C. (1 clinic)
Level 4 Regional Resource CenterLevel 4 Regional Resource Centers are the most developed care models across the country and are designated by TSGA. In order to receive a Level 4 TS Regional Resource Center designation, these programs meet all the requirements of Levels 1, 2, and 3, plus are involved in multi-institutional Turner syndrome research, have a program to train or mentor medical students and Fellows, and are willing to provide support and resources to other providers in the region as needed.
Children’s National
111 Michigan Avenue NW, Washington, DC 20010
Lead: Roopa Shankar MD
Phone: (202) 476-2121
Visit clinic website →
111 Michigan Avenue NW, Washington, DC 20010
Lead: Roopa Shankar MD
Phone: (202) 476-2121
Visit clinic website →
Wisconsin (1 clinic)
Children’s Wisconsin
8915 W. Connell Ct., Milwaukee, WI 53226
Lead: Elizabeth Dabrowski MD
Phone: (414) 266-2000
Visit clinic website →
8915 W. Connell Ct., Milwaukee, WI 53226
Lead: Elizabeth Dabrowski MD
Phone: (414) 266-2000
Visit clinic website →
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