“Unlocking the world of possibilities.”


News & Events

After two years of dedicated work by a team of experts from both the US and Europe, the new Care Guidelines for TS have been finalized.  TSGA is proud to have been a primary sponsor of this project.  Find out more…


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Support the important work of Turner Syndrome Global Alliance (TSGA). TSGA is a 501c3 nonprofit organization and your donation is tax-exempt to the full extent of the law. Your donation will enable us to continue our important work as we connect science, resources, and funding to the TS community. Click here to make a donation.

Latest News




Dedicated work by a team of experts from both the US and Europe, the new Care Guidelines for TS have been finalized. TSGA is proud to have been a primary sponsor of this project.


These guidelines are directed by evidence-based research. We are now working with the

greater TS community to increase research to fill in gaps in our knowledge.


 TS Care Guidelines Abridged Version For Patients and Families

Available in English and Spanish


This is a brief synopsis of the Professional Care Guidelines intended to improve care

by encouraging communication between individuals with Turner syndrome/parents/caregivers and their health-care providers during visits.



Resource Kit no price


TSGA is excited to announce the launch of the TSGA Resource Kit for newly diagnosed

families. This Kit, made possible by grants from MMIC and Genentech, has been distributed

to ten Turner Syndrome Clinics across the country. It includes a Bear to remind patients and

families that they have joined a community of support, and it includes a flash drive with

multiple resources to ensure access to good information about TS.

It is our hope that the information in this Resource Kit will help to inform and empower

individuals and families as they navigate the health care system to advocate for their own

or their loved one’s needs.

TSGA is seeking to partner with local communities to expand this project to other Clinics in

the future. The Resource Kit is available for individual purchase on our website at



Julia Anne Ardoin


This video was created by Turner Syndrome Global Alliance for Growth Awareness. Growth is an indicator for health in children. Help us spread the word by sharing this video.

YouTube Video – Growth Awareness







Aortic Butterflies for AmberDimensions in Turner Syndrome – This recent research article comes out of Oregon Health and Sciences University, home of Dr. Michael Silberbach who is a cardiologist, researcher, and long time TS advocate. The information presented in this article will allow clinicians and other caregivers to calculate aortic Z-scores using a Turner-based reference population. Share this with your own cardiologist! June 2015 Read more…

About Us

Who we are

Turner Syndrome Global Alliance (TSGA) was incorporated in May 2014 and granted its 501c3 nonprofit status in September 2014. We are further classified as a 509(a)(2) Public Charity and all donations made to TSGA are tax-deductible to the full extent of the law.

We are based out of Overland Park, Kansas and are seeking to have a global impact through our work. Read more…

What we do

Our mission is to “connect science, resources, and funding to the Turner Syndrome community.”

The Turner Syndrome Global Alliance (TSGA) aims to have a direct impact on the lives of girls, women, and families living with Turner syndrome (TS) by working to include TS in the national conversation on genetic research. TSGA will foster collaborative opportunities for data sharing, the development of evidence based standards of care, and translational research to improve the quality of life for girls and women with TS.
TSGA also supports the development of a network of clinics as an effective health care delivery system for comprehensive care for girls and women with TS and to increase the TS knowledge base of medical professionals across the country. Additionally, TSGA will provide information on the most current research, outcomes, and strategies to allow girls and women with TS to live life to their fullest potential.

TSGA – “Unlocking the world of possibilities”

About Turner Syndrome

Turner syndrome is a chromosomal disorder caused by a partial or completely missing x chromosome.  Read more…  

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TSGA is committed to increasing research on Turner syndrome by working with individuals, families, medical providers, and researchers to create opportunities for evidence-based research to occur.  Learn more… 

Together we can change the future through research.


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