TURNER SYNDROME GLOBAL ALLIANCE

Connecting 1 in 2,000 to care, research, and community

We connect people living with Turner syndrome to the specialized care, cutting-edge research, and global community they deserve — from diagnosis through every stage of life.

1 in 2,000

Girls born with TS

12 Years

Advancing TS Care

40+ Clinics

Connected Clinics

WHO WE ARE

A global alliance founded to elevate standards of TS care, research and community support.

WHO WE SERVE

Patients, families, clinicians and researchers across every life stage of Turner Syndrome.

What We Do

Fund research, credential clinics and surface trusted resources in one helpful website.

Where would you like to start?

FOR PATIENTS & FAMILIES

Individuals & Families

Find a specialist clinic near you, access condition guides, and connect with a community that understands your journey.

FOR PROFESSIONALS

For Professionals

Access clinical care guidelines, InsighTS Registry, and pursue TSGA clinic designation for your practice.

The work that moves the field forward

InsighTS Registry

A longitudinal patient registry powering the most comprehensive dataset on Turner syndrome in the world. Enroll today and add your story to the science.

NASCARR Platform

The Network for Advancing Sex Chromosome Aneuploidy Research Readiness (NASCARR) — connecting specialist clinics for collaborative care and shared research.

Fund the Future

Every dollar raised goes directly toward funding the research, registries, and clinical programs that improve outcomes for people with Turner syndrome.

FIND A TS CLINIC

Specialty Turner syndrome care, mapped.

TSGA maintains a directory of specialist clinics across the United States. Search by state to find experienced Turner syndrome care teams near you.

close up of nurse wearing purple scrubs

Join Our Newsletter

Stay up to date with the latest news and resources from TSGA.